Nerve & Me

 

This week, I was honored to share an essay in Vela Magazine , a publication I’ve long admired. The essay explores what life with epilepsy has taught me about uncertainty.

The world—and our bodies—do not always operate in a neat and orderly fashion. Control is not our default modus operandi, or even our ideal. Thirty years with epilepsy has taught me to accept, even love, this truth.

I rarely talk about my epilepsy, and when I do, it feels vaguely dissatisfying, as if I’m not quite expressing things adequately. Writing this piece, then, was healing.

It was also difficult, requiring a ton of research. In the process, I learned a lot about epilepsy in the workplace that I’d never known–even as I’ve managed my own condition. In terms of career,  epilepsy has can be a nasty deterrent. 

Still, I like to think the human spirit is indomitable. And this seems like a fine time for a “Garden State” throwback (which, for those too young to remember, features Natalie Portman as an epileptic). No seizures here, just love…!

Let nothing hold us back from the life we crave.